Our much experienced Spoonies had their say on this topic, and this is what they came up with;
“Know that it can always be worse, and for someone else, it is. Have compassion, have gratitude, practice mindfulness and realize impermanence as a pervasive force in the universe.”
“By thinking it could be a lot worse.. even though I have really bad days. I know that I can handle the pain, or I wouldn’t be going through it. As testing as it is. It’s better me going through it.. than someone who can’t handle it at all. Who ends up leaving the world too early, leaving family and friends behind. I like to think of it as, doing others a favour, that I never was asked to do.”
“find a great fb chronic pain group!”
“By giving yourself time off… allowing yourself to stop and take a moment to recover… be it a bath… or a cuppa.. massage… singing. .. etc.. etc.. anything that gives you a break”
“I look at the pain as a gift that slows me down so I can enjoy all the things I missed in life when I was well and used to start running at 6 a.m. and not stop until midnight. Now I really do smell the roses, linger over coffee, etc., because, LOL, lots of days that little bit is all I can do.”
“Learn to laugh even when things go bad”
“I look at what i have when the pain is bad, a warm home, food, a wonderful husband and 2 fab children. I think about the people who are on the streets with nothing, then it spurs me on.”
“Look around and appreciate the wonderful things around you,talk to like minded people on here,and most of all allow your self to care for yourself”
“I take each day as it comes, if pain is present, I have an easy day, doing crosswords, reading, anything that will not make the pain worse”
“Take things one moment at a time…savor the good moments and realize the bad moments will be gone soon.”
“Remember that however alone and isolated you may feel at times, you never are. I have the support of my family, friends and boyfriend, and we all have each other in this group.”
Personally, I echo what has been said. But to add to this is acceptance. Yes life has changed beyond recognition, but this new me has it’s positives. Learn to love the new you and see the things, however small you have gained. There are better days, when fun is appreciated and grabbed wholeheartedly. And those bad days can be enjoyed too by relaxing into the fact that today is a film day, chilling in bed with heat wraps.
My online friends have been so important to me during those bleak times. No-one understands me more than others who are experiencing similar.
We’d all choose a different path if we could, but keeping a positive attitude, despite it all is so essential! But it’s a grieving process, it takes time. Hang in there, you’ll get to the point where you can be positive and chronically sick and in pain…