Ok, so it seemed like a good idea to reduce my steroids… So when I visited my prof last month I enthusiastically pushed for a reduction. He suggested a 10mg reduction, I bartered him down to a 20mg reduction. After all these dreadful side-effects aren’t going to respond to such a limited drop – I have cataracts, osteo, high BP & Cholestrol, terrible Cushing’s, and very weak skin 😒
But I picked the wrong time of year!!!
Being an optimist, I’m looking on the bright side…. I’ve managed to watch oodles of holiday films, I’ve been saved the hassle and expense of Christmas markets and the crowds from light switch on events and parades 😉
And, my boys have taken to our many changes of plans wonderfully! They’re such stars ⭐️. So how can I complain???
I have my gifts – courtesy of the Internet 👍. I have food either stored or on order – again thanks to online shopping. Plus I have meals out over the ho,u days booked too – so limited cooking, and cheaper too since I’m pagan, so celebrate on the 21st 😉
So I can just chill, thankfully, as I’ve limited energy to do anything else!
So my lesson is that the holidays can be enjoyed, Spoonie style…
Here’s my tips…
(1) buy everything online! I’ve saved loads finding voucher deals and free postage frequently too 👍👍👍. From gifts to food, wrap to cards, and even decorations too!
(2) enlist the help of close friends, carers or family… My carer is helping to get my house in order & our cooking etc, and a close friend picked up my tree 👍👍👍 – he took photos and messaged them so I could choose too!
(3) use the opportunity to enjoy holiday films with popcorn for the kids 👍👍👍. They’ll be extremely tied up with their new games afterwards, so grab the chance to spend quality time with them 😉
(4) choose the perfect Spoonie gifts for your present list – gadgets galore to help where the body can’t – I have cooking aids on order this year 👍
(5) don’t stress!!! Who carers that you’re doing it different,y, if it works go for it!
(6) eat out rather than cook! There are loads of deals around, so book and save on cooking 👍👍👍
(7) gift bags with tissue paper to save wrapping and a stamp to ‘write’ cards too 😉
(8) buy local 😄. It’s good for the economy to buy from independent shops and saves lots in wasting spoons traveling. I’m off to a nearby farmers market, if spoons allow, for my veg. Or failing that, my carer is taking me to the local organic veg shop for the fresh bits and pieces 👍👍👍
(9) book treatments near to the holidays so you get the most of its benefits over the break 👍👍👍. My next reflexology session is the 11th – perfect as I’ll be zapped immediately afterwards, but recover and feel the benefits by Yuletide 😉
(10) don’t do what I’ve done and reduce important treatments close to the holidays! But if you have to, then like me, you’ll survive 😉
I bet you can come up with loads more ideas…
Spoonie style holiday fun!