I’ve had a dreadful time of it recently.
My reduction in steroids (my choice due to the horrendous side-effects) has had me feeling so terribly spoonless 🍴
I’ve achieved so very little each day & felt so down because of it…
But I’ve embraced the better days, like today for example, I managed to achieve a few little things – sort my mail & pay the bills, order my grocery shopping online & also buy a few crafts for my boys to enjoy at the weekends – we can enjoy some quality time together 👍
It might not seem like much, but to me it was wonderful! Glimpses out from the fog of fatigue cheers my soul hugely! Days like this are special and make me smile from ear to ear 😄. A little glimpse of productivity makes me feel so accomplished and happy!
Yes it would be wonderful to get out, to live a little, but these little activities give me a boost. I’ve done something productive today 👍👍👍
Taking photos 📷
Crafting with my boys 🎨
Lunch with friends 🍴
The kindness of others.
Cleansing with Sage 🌿
My eclectic clothing & jewellery.
Remembering and honouring my loved ones 💞
My cozy home 🏡
The view from the window.
A cozy blanket.
A warming mug of rooibos tea ☕️
Hot soup & crusty bread 🍞
Listening to my boys laughing together 😄
Getting parcels in the post 📦
A hot pain relieving shower 🚿
Feeling so happy I sing 🎤
Signs from my angels 👼
A nap 💤
Smiling at strangers 😄
The list is endless…
Can you add to it???
I’m starting the year even more spoonless 🍴 than usual… My steroid reduction is proving extremely tough, but I’m determined to continue to try to reduce the side-effects (I have Cushing’s, cataracts, high BP, high cholesterol, osteoporosis, severe bruising, thin cracked and tearing skin, and of course the weight gain)…
So I need a new way to deal with my day…
Hence, for the first time in a long time I’m setting g myself some goals for the new year…
(1) family meals at the table to ensure some quality family time.
(2) planning some quality family time here at home more often since I’m often too spoonless to go out, and cancel far too frequently.
(3) giving myself a kick to get out in the fresh air – for wheels on the canal, fire-pits in the garden etc., as I’m often a hermit in the winter months, but I’m sure I’ll benefit from fresh air and winter sunshine.
(4) relying on my carer to get us out more often, even if it’s just for a drive or a wander in the park.
(5) using my reading glasses, book light & kindle so I can enjoy books & magazines, despite the cataracts.
(6) finding activities I CAN do, despite being spoonless… This is a tough one, but one I will work on…
(7) staying positive, despite the too frequent spoonless 🍴 days – it may have gotten harder to do things, but I won’t let it zap my spirit 😄
I’m sure I’ll be adding to the list…
What do you hope to achieve for 2015???