It was a long day!
I had intensive physio this morning to get me independent! Followed by a long journey home via a shop in our nearby town to collect a threshold ramp, in the back of my wav (wheelchair accessible vehicle) as I can’t get into the seats!
I arrived, got inside, used the commode, got on my stairlift, and was then greeted by Rolo! He was over the moon! I then rode up the stairs, twizzled, transferred to my push wheelchair and was wheeled to the bed, transferred to bed, and then got my dead leg into bed!
James, my hubby, helped loads as it was a lot to do on one go!!!!!
I then collapsed for hours!!!!!
I’ve now got out of bed – with the help of an IKEA storage box to push up on as the bed is too low! Then used the commode and got back into bed!
Not sure how I’ll cope if James goes back to work next week though! But Cory has offered to help in the night – if I can actually wake him up that is!!!
But each day things will improve I’m sure so I’ll get there…
I can now transfer from my powerchair to the toilet and my bed with a Zimmer frame! Yeah!!!!!
Today’s plan, if the physios have time, is to teach me how to get in and out of bed with this dead weight of a leg 👍🏻
I’ll be home in no time at this rate!
I took my very first shuffling steps today – just 3, with a Zimmer frame, but a major accomplishment!!! Considering I still can’t feel part of my leg and it’s a dead weight!
I also only needed minimal help to roll for the bedpan & I rolled solo to get off it!!!
I’m so delighted!
Now they need to teach me how to move my leg – it’s a dead weight! But I’m confident the OT will have a trick or two up her sleeve 😉
My eldest is catching up on his sleep after the festival so it’s just my youngest and hubby visiting today.
My hubby has had the week off since I’m incarcerated and having lots of problems, which has been perfect as he has enough to deal with without working nights too!
It’s a good set up these night shifts, as I get to rest when he’s working so I’m ready for some fun when he’s off. And if I’m too zapped, we just do something small such as lunch out or a small wander with the dogs. Anything to get me out.
I’m looking forward to getting back to life once I get out of here.
My eldest has gone off to a festival today in Leeds. He’s with his older cousin so I know he’s safe.
I’m sure he’ll have an amazing time!
I’d love to go to a festival but wheelchairs and muddy fields don’t mix! We have enjoyed a few local child friendly festivals, and they were perfect! But I haven’t looked this year.
A plan for next year…
I managed to slide my foot all by myself along the foot plate of the standing frame yesterday! Yeah!
It’s a bit of a pain having a numb leg!!!!! But tiny bits of progress are much appreciated!
This standing frame is amazing! They lift and move my leg slowly, whilst I slide my bum to the edge of the bed, then they hold it and turn it as I twist around, until I’m sat with both feet on the floor. Then they slide the standing frame under my feet, rest the pads against my knees and I grab the top of the frame and pull up to standing! I then hold on – it’s as tall as my armpits- and they wheel it to my powerchair and I sit back down! They then lift my leg and place the foot rest under it!
But getting back into bed is painful as once I’m sitting on the bed they drag both my legs round quickly! At which point I swear! But then I can move my bum whilst they manoeuvre my leg sideways until I’m back in bed!
I’m in awe that I can get the chance to escape my bed for a few hours! But my bum gets numb sitting for that long with a dead weight for a leg!
Improvements each day…
Yesterday I sat in my powerchair for 5 hours! So I was rewarded with a trip off the ward to visit Starbucks – an iced caramel macchiato, yum!
OT & Physio coming again tomorrow so we’ll see if things are improving…
Each step is a step to getting out of here!
I’m slowly, slowly settling down after the op. I now have pills to slow down my heart rate and seeing the cardiologist in outpatients once I’ve recovered.
I still can’t move my leg independently as the nerve has been bruised and my muscles were cut through too. But I’m standing daily so they can check for pressure sores, use my muscles and get the bed changed too.
Patience I guess…
My eldest gets his GCSE exam results today! Nail biting time!!!
Fingers crossed he gets the results he needs to start his A-Levels at college…
It will be my youngest’s turn next year too. A very busy time for both of them.
They used to help me tremendously but I’ve on purpose reduced their role in my care now as they’re too busy with school/college. They need their free time. But helping in the past has meant they’ve grown into very helpful and compassionate young men. I’m ultra proud of them both.
I got out of bed for the first time today, after my very large operation on Monday to put a big plate in my leg to repair my broken hip. My leg is a dead weight at the mo, because of the large amount of nerve block they put into it, but it’ll improve as the days go on… So to get me moving, they helped me to swivelled in bed with the physio holding my leg, then stood up onto a swivel stand and then sat in my powerchair! Progress!!!!!
Unfortunately my heart rate went crazy again, but I don’t need blood this time…
I had an echocardiogram earlier, but they also sent me for a CT angio too tonight.
I should hear the results at some point soon…
It’s been one thing after another this week, so I’ll be glad when everything is finally settled and I get home…
Today it was all about trying to control my pain and attempt to get my heart rate to settle with blood transfusions…
It’s a very very tough time right now, but things can only improve hopefully…