Monthly Archives: September 2017

The not so secret diary of Spoon Shortage Sue – 30th September 

It’s the weekend again – time for quality time with my boys. We like to try to do something fun together to create more memories. 

Hopefully the weather will be ok so we can enjoy a wander with the dogs…

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Christmas Markets…

Our cruise is no longer a possibility sadly, my gp advised that I’m just not well enough, plus wouldn’t get insurance now either until my heart problems are solved…

We’ve struggled big time finding somewhere else to go, since I need a wet room with seat and grab rails, grab rails on the toilet too and plenty of space for my powerchair. But we found a company which specialises in holidays for disabled people, so they’ve searched and found us the perfect hotel!

It’s pretty costly but it’s our only option in the area we want to travel, so we’ve booked a couple of nights 👍🏻👍🏻👍🏻

York Christmas Market here we come!  It might not be Amsterdam and Hamburg aboard a cruise ship but it’s a break none the less!

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Insomnia…

Laying here at 2am just thinking and trying to forget my dreams and fears…

It’s a most unpleasant time to fight the ptsd, the nighttime makes everything more intense somehow.

I plan to raid my bag to help. It’s filled with things to comfort or distract me, so fingers crossed I find something that helps…

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The not so secret diary of Spoon Shortage Sue – 29th September 

Life has changed somewhat since my accident. I’m more disabled now – which isn’t expected to improve, and I have ptsd. So I have much to adapt to…

But I’m learning slowly…  I have new  aids to help me & lots of things to comfort and distract me too. 

It’s a long and difficult road ahead, but I’m determined to gain more independence!!!

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The not so secret diary of Spoon Shortage Sue – 28th September 

I’m nearing the end of my diary now, it’s time for something new…

    So next month I’m doing Spoonie  Photo Prompts – a Prompt each day to inspire a photo. I do hope you join in…

    Keeping myself thinking of positive things really makes a huge difference to my mental health. Being chronically ill and disabled is tough!  So anything which keeps me feeling happy is so important!

    Today I’m planning the photo prompts, it’s keeping me busy on this day of rest. 

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    The not so secret diary of Spoon Shortage Sue – 27th September 

    Today it’s 16 years since we lost our daughter.  I’ll mark the day by lighting candles and putting fresh flowers around the house. 

    My husband bought me a rose that he named after her – Codie.  I love seeing the flowers bloom in the spring. 

    Until we meet again sweet Codie…

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    The nicest compliment…

    I had a total stranger stop me in a garden centre today and as usual she complimented me on my dog Rolo, saying what lovely colouring he has. 

    She the totally surprised me by pointing out that I looked beautiful in all my wonderful coloured clothing. 

    “You look just like mrs Claus!” She exclaimed!

    How lovely to ignore all the negatives and compliment me on something positive. I love Christmas too, so would make the perfect mrs Claus!!!!!

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    The not so secret diary of Spoon Shortage Sue – 26th September 

    I’m hoping to arrange a meet up with different people now I’m recovering…

    I met a lovely lady whilst in hospital. She has Alzheimer’s, and she has broken her arm.  I’ve arranged to visit her on the rehabilitation ward and then in a coffee shop once she comes home. So whilst I’m having my infusions I’ll call in to see her.  

    I also helped to set up a coffee group of disabled people, but I’ve been unable to arrange a meeting in months!  I hope to correct that asap…

    Meeting up with friends is vital for my mental health.  Sadly I’ve lost many due to chronic illness, so I treasure the ones I do have. 

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    The not so secret diary of Spoon Shortage Sue – 25th September 

    I’m hoping to enjoy an outing today, it’ll be tough but having fun is worth it!

    I haven’t decided where to go yet…  A museum? A stately home? A ruin? A castle?  The choices are endless…

    Wherever we go, we’ll make the most of the time out. I may only manage an hour or two before feeling exhausted, but I’ll enjoy each minute!

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    The not so secret diary of Spoon Shortage Sue – 24th September 

    I’ve made the perfect Spoonie haven in my bedroom. Relaxing fairy lights for atmospheric nighttimes, a tv for those insomnia hours and a kettle and toaster for mornings, as I can’t get down to the kitchen. 

    I just love it 😍. Which is very important since I spend a lot of time there!

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